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WNYGFDSG - Newsletter Archive>
Summer, 2006
July 2, 2006
A special thank you to all the volunteers who helped out
with our 2006 Annual Celiac Walk! Despite the inclement
weather, we were still able to send $17,000.00 to the
University of Maryland. As always, we appreciate your
participation in this worthwhile event.
MEETING AND EVENT SCHEDULE
We need your help for the following volunteer opportunities
at our monthly meetings…
Lending Library
Sign-In Desk at Meetings
Refreshment Prep
Please become involved in your support group!Thank you so
much.
The WNY Gluten Free Diet Support Group, Inc. normally meets
one Saturday per month @ 10:00 a.m. at Mt. Mercy Academy
(MMA) in the cafeteria @ 8 Red Jacket Pkwy, just off
Abbott Rd Near South Buffalo’s Mercy Hospital. Meetings
always include special counseling and a grocery bag of
gluten-free items (courtesy of Wegmans) for the newly
diagnosed.
Note that special time is set aside at support meetings
for the newly diagnosed to provide assistance and answer
their questions about celiac disease and the gluten free
diet.
July 29, 2006 New patient meeting.
August 5, 2006 We will have a representative at the 7th
Annual Family Health Fair at the Amherst Senior Center from
9:00am to 12:30pm
August 13, 2006 Dinner at Golden Duck, Williamsville. See
page 4 for details.
September 9, 2006 “Celiac Basics for Kids” - Panel of
parents will present helpful information for children with
Celiac Disease. Meeting to be held at 10:00am with Taco
Luncheon to follow. Suggested donation for adults $6.00,
children 10 and under $4.00.
September 17, 2006 Dinner at Roycroft Inn, East Aurora.
See page 9 for details.
October 7, 2006 Fred Torell (Sous Chef—Amherst St.
Wegman’s) and Jennifer Campagnolo (Manager of Nature’s
Market Place—Alberta Dr. Wegman’s) from Wegman’s will do a
GF cooking demonstration.
November 18, 2006 Annual baked goods auction. Meeting will
be held at the Lancaster Village Municipal Building
(Broadway at Central Avenue, Lancaster)
December 3, 2006 Our annual Holiday Luncheon will be held
at the Rich Renaissance on Sunday, December 3rd. Watch fur
further details.
Have you ordered your Wegman's Gluten Free Food List?
If not, you are making your shopping experience much more
difficult
(and expensive) than it has to be.
Wegman's offers a list of many Wegman's brand products that
are gluten free.
(Do this online by going to the links section of the
webpage.)
NEWS FROM AROUND THE CELIAC WORLD
Celiac Disease Center at Columbia Hosts the XII
International Celiac Disease Symposium 2006
November 9-11, 2006
Hilton NY Hotel
1335 Avenue of the Americas (at 53rd Street & Sixth Avenue)
New York, NY 10019
Celiac Disease will take center stage in New York City as
the Celiac Disease Center at Columbia University hosts the
XII International Celiac Disease Symposium 2006, which will
bring an unprecedented opportunity for each of your to help
shape the future of Celiac Disease by participating in the
symposium, November 9-11, 2006 at the Hilton NY Hotel, New
York City.
The symposium is expected to attract healthcare industry
leaders, clinicians, nutritionists, diagnostic and
pharmaceutical executives, scientists, policy makers,
patients and journalists and will touch on every aspect of
adult and pediatric Celiac Disease—diagnosis, treatment,
business development, science and public policy.
To ensure that symposium registrants gain as much
applicable information to their specific needs as possible,
two separate tracks will run simultaneously throughout the
symposium—one for scientists, the other for patients,
nutritionists and other healthcare professionals.
This symposium has emerged as the single most important
forum for bringing together the world leaders who will
determine the nature of Celiac Disease and its impact on
patients around the globe.
You’ll find more information at
http://www.celiacdiseasecenter.columbia.edu/symposium/index.html
If you are interested in attending, please let Pat Blackett
(684-0783) know as soon as possible. The WNY Gluten Free
Diet Support Group, Inc. has approved the distribution of
funds for those members interested in attending.
WNYGFDSG, Inc.YEAR END SUMMARY
July 2005—June 2006
Education Committee Summary
This committee headed by Elaine Rothfus with the assistance
of Cliff Hauck and Pat Blackett had an extremely busy year.
Cliff spearheaded a joint effort with the local GIG group
to bring internationally known author, dietician and expert
on Celiac Disease to Buffalo in order to present two
workshops. One for health professionals for credit and one
for Celiacs. Out of these workshops came a locally
published booklet prepared by two interns with the US FDA.
It is called “Introduction to living Gluten Free in WNY”.
It is available to our members and will be offered to local
physicians’ offices
We were represented at 3 local health fairs, and Cliff and
Pat did informational presentations at 2 local health food
stores.
Program Committee Summary
Program Chair Elaine Rothfus organized many excellent
information programs this year. Experts spoke on: chronic
illness, ibs and CD; T cells and TTG; the role of genetics
and CD; USFDA representative spoke on the new labeling laws
for Celiacs; a pharmacist kept us up-to-date on GF meds and
nutritional supplements; there was an expert presentation
on osteoporosis and one of nutrition for Celiacs. A
November auction, December holiday luncheon, summer picnic
and a pancake breakfast completed our year.
Special Events Summary
Special event Dinners remain one of the most effective and
popular routes to achieving two important objects: 1)
enhancing education and awareness of “gluten-free” among
restaurants and 2) enhancing the knowledge and confidence
among the newly diagnosed celiacs about “eating out” gluten
free.
During this 12-month period, five (5) dinner event were
attended by nearly 250 people. Thai, Italian, Chinese and
contemporary American establishments (including Wegman’s)
have been included to demonstrate that a wide variety of
delicious cuisine can be prepared gluten-free. Usually
these eating establishments make our published list of
“celiac-friendly” restaurants.
Combined food and fund raisers are also popular with our
members. Pancake breakfasts and auction of member-baked
goods are always a hit!
Miscellaneous
Marilyn and Cliff Hauck represented us at the annual
CSA/USA Conference. Cliff has accepted the appointment as
Region III representative. His area covers all of New
England, New York and New Jersey.
Another successful “walk” was held in May despite the
inclement weather. We were able to send $17,000.00 to the
University of Maryland.
Member, Cathy Austin, held several successful GF cooking
classes at Martins.
Paula McGirr continued to receive high praise for the
maintenance of our website.
New treasurer, John Nettina, filed our first multi-page NYS
and US tax form since we became a not-for-profit
organization.
Fosamax and Other Osteoporosis Drugs Allegedly Linked to
“Dead Jaw” Disease - Please see the homepage and the news
section of the website for a detailed article about this
subject.
SUMMER DINING OPPORTUNITY!!!!!
Dinner at Golden Duck Restaurant
1840 Maple Road
Williamsville, NY 14221
716-639-8888
Sunday, August 13, 2006 at 4:00 pm
Menu (Shared, Family-Style):
Egg Drop Soup
Summer Roll
Asparagus with Shrimp/White Sauce
Chicken with Cashews/Rice Noodles
Beef with Greens and Garlic/Brown Sauce
Pork with Potato Chips
Mixed Veggies Only
Mixed Seafood with Vegetables
Fruit Plate
Tea Included
Cash Bar
Total—All inclusive donation: $14.00
Please make your checks payable to WNYGFDSG, Inc. and send
to Marilyn Hauck, 30 Ainsley Court,
Williamsville, NY, 14221 by August 4th. Be sure to write
“Golden Duck Dinner” on your check. Your check is your
reservation. Reply early as space is limited.
FALL GLUTEN-FREE DINING OPPORTUNITY - RESERVE YOUR SPOT NOW
Roycroft Inn
40 South Grove Street, East Aurora, NY
Sunday, September 17, 2006
4:00 pm to 7:00 pm
TOUR OF THE INN (4:15 PM)
Docent to give guided tour and history of the Inn
Cash Bar
Soup - Ginger, Butternut Squash Bisque
or
Salad - Arugula Salad – with toasted walnuts and Gorgonzola
dressing with water chestnuts and endive
Entrees Choices
Grilled Sirloin Filet – with roasted garlic and demi-glace
or
Fennel and Dill Crusted Salmon – with beurre blanc
or
Roasted Natural Chicken – with ginger and cilantro pesto
Dessert
Flourless Chocolate Truffle Cake – with chocolate ganache
and strawberry
Served with coffee and hot tea
DONATION: $26.00 per person, inclusive
Advance reservations along with your payment and menu
selections must be submitted before September 8th. Make
checks payable to WNYGFDSG, Inc. and mail to Marilyn Hauck,
30 Ainsley Court, Williamsville, NY, 14221. Indicate your
meal choices, by checking the appropriate boxes shown
below:
CATHY AUSTIN WILL BE PRESENTING MORE COOKING CLASSES AT
TOPS COOKING SCHOOL
Please see the homepage of the website for all the yummy
details.
We are Glutenfreeworks.com, a brand new website providing
all natural gluten-free and cane sugar-free foods as well
as health and diet information, nutrition charts, recipes,
celiac resources and a discussion forum to help people live
the gluten-free lifestyle. You may have heard of us.
Already hundreds of people are visiting us every day!
You will find hundreds of products from over 35 brands of
gluten-free and cane sugar-free foods at
www.Glutenfreeworks.com. All our products are made from
natural ingredients and many are organic. We eat the foods
we carry, so you know they are safe. Being a nurse skilled
in celiac disease, I personally review the medical
information on the website to make sure it is as accurate
as possible.
Everyone who works here has celiac disease. We understand
and have personally dealt with the years of suffering, the
joy of finally finding a diagnosis, the learning how to
live gluten-free and the struggle to find foods that are
safe and reasonably priced.
Please forward this message to your friends, family and
fellow support group members who want to save money while
adding greater variety to their diets. - - Cleo
Libonati, RN, BSN—President & CEO of Gluten Free Works,
Inc.™
NEW WEBSITE
We are Glutenfreeworks.com, a brand new website providing
all natural gluten-free and cane sugar-free foods as well
as health and diet information, nutrition charts, recipes,
celiac resources and a discussion forum to help people live
the gluten-free lifestyle. You may have heard of us.
Already hundreds of people are visiting us every day!
You will find hundreds of products from over 35 brands of
gluten-free and cane sugar-free foods at
www.Glutenfreeworks.com. All our products are made from
natural ingredients and many are organic. We eat the foods
we carry, so you know they are safe. Being a nurse skilled
in celiac disease, I personally review the medical
information on the website to make sure it is as accurate
as possible.
Everyone who works here has celiac disease. We understand
and have personally dealt with the years of suffering, the
joy of finally finding a diagnosis, the learning how to
live gluten-free and the struggle to find foods that are
safe and reasonably priced.
NEW BOOK - EXCELLENT RESOURCE
CELIAC DISEASE: A Hidden Epidemic (Collins Books; On-Sale
Feb 7, 2006; ISBN: 006076693X ; Hardcover, $22.95) is the
first and only authoritative guide to this serious
autoimmune disease. As co-author Dr. Peter Green explains
"celiac disease has been dubbed the 'great pretender.' Its
symptoms can easily masquerade as a number of other
illnesses...and it is those conditions that are often
diagnosed instead of celiac disease. The one thing most
patients have in common is a long road to diagnosis." While
celiac disease is well known in Europe and other areas, in
the United States it has long been ignored by many in the
medical profession -- prompting The Wall Street Journal to
recently note that "the story of celiac disease shows how
blind spots can develop in the U.S. medical system"
(12/9/05).
CELIAC DISEASE: A Hidden Epidemic is available online at
Amazon.com and Barnes and Noble.com.
RESTAURANT LIST - This list is available on the website,
along with links to many of the GF menu choices available.
GLUTEN-FREE RECIPE CORNER
Bored with Meatloaf?
Try these ideas with your basic recipe for a more ethnic
flare:
CARIBBEAN: Add diced salt pork and green onions. Also,
try ginger, green pepper and curry powder.
CHINESE: Add rice, water chestnuts and sweet-and-sour
sauce. Or GF soy sauce, green onions and ginger.
FRENCH: Mix in mushrooms, red wine and pepper. Also, try
white wine, Dijon mustard and parsley.
GREEK: Add ground lamb and feta cheese.
INDIAN: Add curry powder and crushed garbanzo beans. Or
add cubed potatoes, GF yogurt and mustard seeds.
ITALIAN: Add oregano, marjoram and parmesan cheese. Or mix
in cooked spinach, nutmeg and garlic. Also try fennel
seeds and chopped GF Italian sausage.
MEXICAN: Add fresh cilantro and green chilies. Or add
white cheese, chili powder and cumin.
POLISH: Add bacon drippings, dill pickles and hard-boiled
eggs. Or add horseradish and GF sour cream.
PUERTO RICAN: Add sliced green olives, ham and raisins.
Or mix in onions, garlic and chopped green bell pepper.
Also try GF chorizo sausage and tomato sauce.
TAHAI: Mix in peanuts and hot red peppers. Also, try
coconut milk and grated lime zest.
- - Westchester Celiac Sprue Support Group Newsletter April
2006
-
DISCLAIMER
The recommendations, information, dietary suggestions,
product news, menu’s recipes and related data generated by
the WNY Gluten Free Diet Support Group are intended for the
benefit of our members and other vested parties.
The text has not been submitted to CSA/USA Inc. or it’s
medical Board for approval. Individuals should consult with
their physician before following any medical or diet
recommendations mentioned in this newsletter.
Opinions expressed are those of the editor or identified
contributor and are not necessarily endorsed by CSA/USA
Inc.
Food manufacturers products are subject to formula change
at any time and these changes may not be reflected on
labels. Products mentioned or omitted do not constitute
endorsement. No liability is implied by or assumed for the
use of information contained in this newsletter.
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